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When you registered, you might have been so excited to get to Camfrog, that maybe you accidentally entered your wrong birthdate, and now are missing out on the special birthday icon!We just published a new feature, that lets you modify your birthdate and gender on your profile.They had attributed the elevated leukocyte counts to chronic sinusitis and bronchial infections that have palgued me for years.I live in southwest Georgia which seems to be the allergy capitol of the world.I have been hospitalized 5 more times for sepsis/infections, pneumonia, and cellulitis this year (2016). My neighbor's dad & uncle both lived with cll for 25 years and never needed treatment.My H/O told me that I was starting to produce normal (non-cancerous) WBCs! The leukemia cells have spread to my lungs, but when necessary, the same chemo treatments should kill the cancer cells. My doctors told me that I would die from infection before the leukemia would kill me. I know of many on various boards who have lived 20 years, again without treatment, and many 20 years who've had multiple treatments.

I went to a hematologist/oncologist and was diagnosed with atypical CLL. I was on the "watch and wait" period until December of 2015. I went 6.5 years from dx to my first treatment in 2008.I am 64 and was diagnosed about a year ago I am stage 0 and was told if things go as they are I will die of old age before CLL bothers me I am being treated at Sloan-Kettering in Sleppy Hollow NY My wife life was saved at Sloan in NYC stage 3 Esophigal cancer GREAT PEOPLE THEREHi: I am 80 years old and have been living with CLL for 12 years.It is a wait and see kind of cancer and my feeling was that I was not going to worry about something I couldn't do anything about.and very good some people goes 12year and still going.... I am 68, still practicing law and enjoy it, ran the NY Marathon 5 years ago, love to fish and have a great family. In 3/2008 he was rushed to the hospital with very high fever his white blood cells were off the chart. His cancer spread through out his body with the speed of light. My Oncologist recommended Chemo and I start it next week (14th of May). My mom was diagnosed W/CLL when she was 60 years of age... Common sense would probably say that less stress, good nutrtion, and positive attitude would mean more years and less symptoms. Humm, may not happen tonight if I don't sign off now! I am just wondering what everyone's wbc count was when they found out they had leukemia. I was diagnosed 3 years ago with CLL after I found that the Red Cross would not accept a blood donation from me because I was "anemic" (I was 54 years old at the time). I see the oncologist once every 6 months and have no overt symptoms I have noticed and am on no medication.Just diagnosed with CLL because I mentioned that I have a "bump" in my neck during an annual physical. most people would have told you he was the picture of health and vigor at age 69! AND the reason he had to go on the IV-Ig G was the result of 7 infections in 11 months .. I do take really good care of him with LOTS of rest, vitamins and as little stress as possible .. My husband was diagnosed with Skin Cancer in 9/07 and CLL in 2008. I was told what most have heard that something else (like old age) would likely kill me before the CLL does but now I am pretty scared. There is no toe-tag telling me when I am going to die. My mother was diagnosed with CLL when she was 62 and survived for 17 years. I have a wonderful kind man now, but he does have me worried because he is worried about platelet counts starting to drop. He wants to see me in ten weeks instead of the usual 3 months. Lately my symptoms have decreased and counts are fairly steady without big increases. Perhaps the fact that I haven't been dwelling on the disease. From what I have read, you might have some cause for concern if your WBC doubled in 2 months but your increase seems to be even slower than mine.




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